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With data starting in 2017, the International Severe Asthma Registry (ISAR) is the first global registry for severe asthma, created as a joint initiative where national registries retain ownership of their data while sharing it with ISAR for ethically approved research. By collecting anonymized, standardized patient-level data from around the world, ISAR provides a unique, longitudinal and real-life resource to study severe asthma.
For a limited time, get 30-day access for just US $1,000! Save time finding the right population healthcare database by browsing our ~525 curated profiles from 70+ countries. This tool is designed to help healthcare professionals, data scientists, and researchers accelerate their work.
OPCRDA collects de-identified Electronic Medical Records (EMR) patient data from GP practices and respiratory and allergy specialist practices across Australia. Data include information on prescriptions, medical devices, procedures, clinical measurements, healthcare provider details, biomarker data, patient-reported outcomes, lifestyle factors, and sociodemographic information.
The Optimum Patient Care Research Database (OPCRD) provides de-identified data from ~1,100 general practices and more than 25 million patients in the UK. The de-identified electronic medical records, patient questionnaires and clinical review data provided by OPCRD offer an essential source of real-world data to promote evidence-based research and quality improvement.
The National Trauma Registry (NTR) of Norway is a robust, population-based medical quality registry capturing detailed metadata on all seriously injured patients treated by specialist health services nationwide. With over 100 data fields, the NTR enables quality improvement in trauma care by tracking patient demographics, injury characteristics, and treatment outcomes from prehospital to rehabilitation phases.
ICEBIO is an Icelandic nationwide database on patients treated with biologic disease-modifying antirheumatic drugs (DMARDs) due to inflammatory joint diseases; including RA (rheumatoid arthritis), AS (ankylosing spondylitis), and PsA (psoriatic arthritis). The database is based on the Danish Registry for Biologic Therapies in Rheumatology, DANBIO. ICEBIO started collecting data in 2007 and contains comprehensive patient characteristics, along with disease activity scores and information on treatment.
We are presenting a second poster at ICPE in August, co-authored with the Wound Care Collaborative Community (WCCC) titled “Comprehensive Landscape Analysis for Usable Real-World Wound Care Data.”
Our poster titled “Landscape of Public Health Data Dashboards: Comparison of Key Features for Epidemiology Research” will be presented at ISPE's 41st Annual Meeting, scheduled for August 22-26 at the Walter E. Washington Convention Center in Washington DC.
With data starting in 1977, NACSA is the primary database for collecting data on adult cardiac surgery in the United Kingdom, including information from NHS and private hospitals. This audit, part of the National Cardiac Audit Programme (NCAP), provides an overview of the state of cardiac surgery in the UK, including activity trends and quality measures.
