Finnish Register of Congenital Malformations (Finland) **

Database Contact Data

Dr. Sonja Kiuru-Kuhlefelt
Chief Physician
National Institute for Health and Welfare, Finland (THL)
Information Services
Register of Congenital Malformations
P.O. Box 30
00271 Helsinki
FINLAND
Email: sonja.kiuru-kuhlefelt@thl.fi
Phone: +358 29 524 7524

Alternate Contact

National Institute for Health and Welfare, Finland (THL)
PO Box 30
Mannerheimintie 166
FI-00271 Helsinki
FINLAND
Phone: +358 29 524 6000

References of Studies Using/Describing Database

1. Kinnunen J, Nikkinen H, Keikkala E, Mustaniemi S, Gissler M, Laivuori H, Eriksson JG, Kaaja R, Pouta A, Kajantie E, Vääräsmäki M. Gestational diabetes is associated with the risk of offspring's congenital anomalies: a register-based cohort study. BMC Pregnancy Childbirth. 2023 Oct 3;23(1):708. doi: 10.1186/s12884-023-05996-6. PMID: 37789251; PMCID: PMC10548673.

2. Kjerpeseth LJ, Cesta CE, Furu K, Engeland A, Gissler M, Gulseth HL, Karlstad Ø, Leinonen MK, Pazzagli L, Zoega H, Cohen JM. Metformin Versus Insulin and Risk of Major Congenital Malformations in Pregnancies With Type 2 Diabetes: A Nordic Register-Based Cohort Study. Diabetes Care. 2023 Aug 1;46(8):1556-1564.

3. Claridge H, Tan J, Loane M, Garne E, Barisic I, Cavero-Carbonell C, Dias C, Gatt M, Jordan S, Khoshnood B, Kiuru-Kuhlefelt S, Klungsoyr K, Mokoroa Carollo O, Nelen V, Neville AJ, Pierini A, Randrianaivo H, Rissmann A, Tucker D, de Walle H, Wertelecki W, Morris JK. Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies. BMJ Open. 2023 Jul 27;13(7):e071687. doi: 10.1136/bmjopen-2023-071687. PMID: 37500278; PMCID: PMC10387628.

4. Raitio A, Heiskanen S, Syvänen J, Leinonen MK, Kemppainen T, Löyttyniemi E, Ahonen M, Gissler M, Helenius I. Maternal Risk Factors for Congenital Vertebral Anomalies: A Population-Based Study. J Bone Joint Surg Am. 2023 Jul 19;105(14):1087-1092.

5. Cohen JM, Alvestad S, Cesta CE, Bjørk MH, Leinonen MK, Nørgaard M, Einarsdóttir K, Engeland A, Gissler M, Karlstad Ø, Klungsøyr K, Odsbu I, Reutfors J, Selmer RM, Tomson T, Ulrichsen SP, Zoega H, Furu K. Comparative Safety of Antiseizure Medication Monotherapy for Major Malformations. Ann Neurol. 2023 Mar;93(3):551-562.

6. Kuu-Karkku L, Suominen A, Svedström-Oristo AL. Craniofacial microsomia - more than a structural malformation. Orthod Craniofac Res. 2023 Feb;26(1):117-122.

7. Tauriainen A, Raitio A, Tauriainen T, Vanamo K, Sankilampi U, Helenius I, Hyvärinen A. Comparison of three risk stratification scores in gastroschisis neonates: gastroschisis prognostic score, gastroschisis risk stratification index and complex gastroschisis. Pediatr Surg Int. 2022 Oct;38(10):1377-1383.

8. Heiskanen S, Syvänen J, Helenius I, Kemppainen T, Löyttyniemi E, Gissler M, Raitio A. Increasing Prevalence and High Risk of Associated Anomalies in Congenital Vertebral Defects: A Population-based Study. J Pediatr Orthop. 2022 May-Jun 01;42(5):e538-e543.

9. Ellfolk M, Leinonen MK, Gissler M, Kiuru-Kuhlefelt S, Saastamoinen L, Malm H. Second-generation antipsychotic use during pregnancy and risk of congenital malformations. Eur J Clin Pharmacol. 2021 Nov;77(11):1737-1745.

10. Raitio A, Kalliokoski N, Syvänen J, Harju S, Tauriainen A, Hyvärinen A, Gissler M, Helenius I, Sankilampi U. High incidence of inguinal hernias among patients with congenital abdominal wall defects: a population-based case-control study. Eur J Pediatr. 2021 Aug;180(8):2693-2698.

Medical Birth Register of Denmark (Denmark)

Database Contact Data

Mats Christian Westphal Thrane
The Danish Health Data Authority
Ørestads Boulevard 5
DK-2300 Copenhagen S
DENMARK
Email: MCWT@sundhedsdata.dk

Alternate Contact

The Danish Health Data Authority
Ørestads Boulevard 5
2300 Copenhagen S
DENMARK
Phone: (+45) 7221 6800
Email: kontakt@sundhedsdata.dk

References of Studies Using/Describing Database

1. Wiegers HMG, Körmendiné Farkas D, Horváth-Puhó E, Middeldorp S, van Es N, Sørensen HT. Incidence and prognosis of superficial vein thrombosis during pregnancy and the post-partum period: a Danish nationwide cohort study. Lancet Haematol. 2023 May;10(5):e359-e366.

2. Yang F, Janszky I, Gissler M, Cnattingius S, Roos N, Miao M, Yuan W, Li J, László KD. Preterm Birth, Small for Gestational Age, and Large for Gestational Age and the Risk of Atrial Fibrillation Up to Middle Age. JAMA Pediatr. 2023 Apr 24:e230083.

3. de Knegt VE, Hedley PL, Hedermann G, Wilstrup C, Bækvad-Hansen M, Thagaard IN, Hjalgrim H, Kanters J, Melbye M, Hougaard DM, Hviid A, Krebs L, Breindahl M, Lausten-Thomsen U, Christiansen M. The impact of the COVID-19 lockdown on birthweight among singleton term birth in Denmark. PLoS One. 2023 Apr 20;18(4):e0283909.

4. Lykke MR, Sørensen HT, Lawn JE, Horváth-Puhó E. Long-term Risk of Epilepsy Following Invasive Group B Streptococcus Disease in Neonates in Denmark. JAMA Netw Open. 2023 Apr 3;6(4):e239507.  

5. Li M, Huang C, Yang W, Lee PMY, Liu Y, Lin R, Qin G, Yu Y, Zhou X, Li J. Evaluation of Hypertensive Disorder of Pregnancy and High Refractive Error in Offspring During Childhood and Adolescence. JAMA Netw Open. 2023 Apr 3;6(4):e238694.

6. Luan M, Yang F, Miao M, Yuan W, Gissler M, Arkema EV, Lu D, Li J, László KD. Rheumatoid arthritis and the risk of postpartum psychiatric disorders: a Nordic population-based cohort study. BMC Med. 2023 Apr 3;21(1):126.

7. Liew Z, Meng Q, Yan Q, Schullehner J, Hansen B, Kristiansen SM, Voutchkova DD, Olsen J, Ersbøll AK, Ketzel M, Raaschou-Nielsen O, Ritz BR. Association Between Estimated Geocoded Residential Maternal Exposure to Lithium in Drinking Water and Risk for Autism Spectrum Disorder in Offspring in Denmark. JAMA Pediatr. 2023 Apr 3:e230346.

8. Spangmose AL, Jørgensen MH, Jakobsen C, Wewer V, Rod NH, Ingels H, Pinborg A, Malham M. Pre- and perinatal exposures associated with developing pediatric-onset immune-mediated inflammatory disease: A Danish nation-wide cohort study. J Autoimmun. 2023 Apr;136:103032.

9. Chen H, Janszky I, Rostila M, Wei D, Yang F, Li J, László KD. Bereavement in childhood and young adulthood and the risk of atrial fibrillation: a population-based cohort study from Denmark and Sweden. BMC Med. 2023 Jan 5;21(1):8.

10. Bliddal M, Broe A, Pottegård A, Olsen J, Langhoff-Roos J. The Danish Medical Birth Register. Eur J Epidemiol. 2018 Jan;33(1):27-36.

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