Northwell Wound Registry (USA)

Field Names
Records
Coordinating Country
United States
Region
United States

(New York Metropolitan Area)

Brief Database Description

The Northwell Wound Registry has a total of 15,915 patients with 203,145 discrete wounds. Tissue Analytics wound tracking is done since September 2020.

Northwell has the following data from their primary wound care center:
Clinic Data
Provider Data
Patient Data
Patient visit data
Wound Data
Wound-visit Data
Patient Primary Problems (Wound Diagnoses)
Patient Primary Problem (wound)-Visit Data
Patient Secondary Problems (Other Diagnoses)
Medical History Facts
Patient Allergies
Patient Medications
Patient Labs
Patient Treatments
Patient Procedures (LIMITED)

Database Type
Registry

(This is a cold-fusion based personalized wound registry designed by Northwell IT with a total of 15,915 patients. The registry is continuously updated from Northwell EMR and Tissue Analytics wound tracking.)

Database Source
EHR/EMR
Frequency of Data Collection
Ongoing

(Monthly data dump from EHR into registry)

Frequency of Data Update
Ongoing

(Monthly data dump from EHR into registry)

Years Covered
2015 - Present

[EMR data are available since 2015, while tissue analytics data (wound imaging, etc.) are available only since 2020.]

Population Type
Outpatient/Non-Institutionalized
Insured
Other

(Northwell has data on outpatients only - all insurance and non-insured patients. It is a urban/suburban population, approximately 45% White, 20% Black, and 10% Asian. The average age of patients is 72 in the registry.
NOTE: Northwell can access inpatient data if necessary, but that would be via a traditional chart review.)

Patient Type
Outpatient/Non-Institutionalized

Northwell only has outpatient data in the registry. However, they can access inpatient data if necessary, but that would be via a traditional chart review.

Date of Last Update
Ongoing

The Northwell Wound Registry is updated on an ongoing basis.
This profile was developed for the B.R.I.D.G.E. TO DATA site on February 26, 2024.

Field Names
Records
Database Population Size
<200,000

(15,915 patients)

Active Population Size
<200,000

(15,915 patients)

Annual Change in Population
~600 patients

Approximately 600 new patients are added to the database annually. Patients are never removed from the database.

Sample Weights - Extrapolation Factors
No
Final Population Size
N/A

(Not applicable as data are still being collected)

Field Names
Records
Age of Patients at Data Collection
Yes

Both age and year of birth are recorded

Approximate Percentage of Participants <18 years and those >65 years

< 18 years = 1%
> 65 years = 85%

Gender Data
Yes

(Male / Female)

Percentage of Males/Females

Males = 54%
Females = 46%

Ethnicity / Race Data
Yes

[White
Black/African American
American Indian/Native American
Native Hawaiian/Other Pacific Islander
Asian
Other/Multiracial
Unknown
Declined to answer
Hispanic
Non-Hispanic]

Geographic Location

New York Metropolitan Area

Date of Birth Recorded
Yes

Year of birth and age are both recorded

Death Recorded
No
Availability of death certificate / autopsy information
No
Other Demographic Data
No
Field Names
Records
Physician ID
No
Physician Specialty
No
Pharmacy ID
No
Field Names
Records
Diagnosis Data
Yes

Available information includes:
-Clinic Data
-Provider Data
-Patient Data
-Patient visit data
-Wound Data
-Wound-visit Data
-Patient Primary Problems (Wound Diagnoses)
-Patient Primary Problem (wound)-Visit Data
-Patient Secondary Problems (Other Diagnoses)
-Medical History Facts ICD-10 Diagnosis Codes
-Patient Allergies

Wound data are available on, for example:
-Diabetic foot ulcers (DFUs)
-Venous Leg Ulcers (VLUs)
-Pressure ulcers (PUs)
-Chronic non-pressure ulcers
-Traumatic wounds
-Surgical Dehiscences
-Arterial Ulcers

Diagnoses Coded
ICD-10
Diagnoses: Date Parameters
2015 - Present

[EMR data are available since 2015, while tissue analytics data (wound imaging, etc.) are available only since 2020.
NOTE: Date of diagnosis is not included.]

Diagnoses: Maximum Number of Codes Allowed
Unlimited
Physical Examination Findings
Yes

Vital signs and lab values are searchable.

Birth Defect Data
No
Cancer Data
Yes

However, cancer data are limited to ICD-10 diagnosis codes.

Infectious Disease Data
No
Environmental Exposures
No
Behavioral Data Elements
No
Field Names
Records
Procedure Data
Yes

However this information is limited. Patient treatment information is also available.

Procedures Coded
CPT
Number of Procedures Coded
Limited to procedures performed as pertaining to wound care (i.e., wound debridement, biopsy)
Procedure Date Parameters
2015 - Present

[EMR data are available since 2015, while tissue analytics data (wound imaging, etc.) are available only since 2020.]

Laboratory Information
Yes

Information is available on: Metabolic Panel, Lipid Screen, LFT, WBC/RBC, A1C, most commonly ordered blood work.

Field Names
Records
Drug Data
Yes

Information is available on patient medications

Drug Date Parameters
2015 - Present

[EMR data are available since 2015, while tissue analytics data (wound imaging, etc.) are available only since 2020.]

Drug Regimen & Route
Yes
Drug Manufacturer
No
Drug Dosage
Yes
Drug Days Supply
Yes
Drug Coding System: Maximum Number
Unlimited
Drug Coding System: Primary
N/A

(Not applicable; this information is not available to us; please reach out to database manager for details.)

Drug Coding System: Other
N/A

(Not applicable)

Drug Generic Name
Yes
Drug Additional Information
No
Field Names
Records
Biobank Type
N/A
Human Specimen
N/A
Blood Type
N/A
Biomarkers
N/A
Patient ID
N/A
Number of Samples
N/A
Frequency of Sample Collection
N/A
Pre-diagnostic Sample Collection
N/A
Post-treatment Sample Collection
N/A
Method of Sample Collection
N/A
Age at Sample Collection
N/A
Date of Sample Collection
N/A
Reason for Sample Collection
N/A
Method of Sample Storage
N/A
Length of Sample Storage
N/A
Pathology
N/A
DNA Isolation
N/A
RNA Isolation
N/A
Cell Culture
N/A
Genetic Testing
N/A
Access for Research: Specimens
N/A
Access for Research: Genetic Data
N/A
Access for Research: Epidemiologic Data
N/A
Quality Assurance Procedures
N/A
Family History
N/A
Medical History
N/A
Biobank Linkage
N/A
Field Names
Records
Type of Genetic Database
N/A
Source of Genetic Data
N/A
Specimen Genotyped
N/A
Tissue Form
N/A
Genetic Template
N/A
Gene-Drug Response
N/A
Gene-Disease Relationship
N/A
Gene-Health Outcome Relationship
N/A
Gene-Environment Response
N/A
Method of Imputing Genetic Data
N/A
Genetic Variant Identification
N/A
Genetic Data Level
N/A
Genotyping Method
N/A
Method of Genetic Variant Filtering
N/A
Haplotypes
N/A
Haplogroups
N/A
Variable Number of Tandem Repeats (VNTR)
N/A
Single Nucleotide Polymorphisms (SNPs)
N/A
Variant Type
N/A
Variant Class
N/A
Mutation Indicated
N/A
Position
N/A
Amino Acid Change
N/A
Genotype / Polymorphism
N/A
Allele Frequency
N/A
Linkage Disequilibrium (r²)
N/A
Noncarriers Indicated
N/A
Association Statistics
N/A
Genetic Relatedness Pairing
N/A
Data Sharing: Genetic Data
N/A
Access for Research
N/A
Genetic Data Linkage
N/A
Description of Genetic Data Linkage
N/A
Field Names
Records
Cost Data
No
Cost Denomination
N/A

(Not applicable)

Type of Cost Data
N/A

(Not applicable)

Surrogate Cost Data Link
N/A

(Not applicable)

Description of Surrogate Link
N/A

(Not applicable)

Field Names
Records
Data Validation Against Original Source
No
Access to Medical Records
No

Access is limited to internal personnel only

Linkage to Other Databases
No
Brief Description of Linkage Capabilities

N/A

(Not applicable)

Field Names
Records
Database Contact Data

Amit Rao
Email: arao3@northwell.edu

Website
https://www.northwell.edu/
Alternate Contact

N/A

(Not applicable)

Source of Database Funding
Private

(Institutional Funding)

Sponsoring Government Agency
N/A

(Not applicable)

Sponsoring Pharmaceutical Manufacturer

N/A

(Not applicable)

Database Usage Restrictions
Private Access

Please contact database manager for more information. However, please note: Datasets are designed to facilitate quick queries, and datasets can be exported for further analysis. However, exports would have to be done piecemeal when the required dataset is large.

If the analysis is to be done by Northwell, then one would have to go through the proper channels, i.e., submitting for IRB approval, etc.

Charge for Database Usage
Yes

Please contact database manager for data costs

Data Media Format
Excel / CSV
Number of Publications Using Database
<10

Please contact database manager for more publications.

References of Studies Using/Describing Database

1. Oropallo A, Rao AS, Del Pin C, Ranire‐Maguire M, Mathew A. An objective comparative study of non‐surgical cleansing techniques and cleanser types in bacterial burden management. International Wound Journal. 2024 Feb;21(2):e14730.

2. Del Pin C, Rao A, Coles M, Del Rio MB, Alisha Oropallo A. Cisgender cellular tissue-based products improve wound healing. Wounds. 2024;36(1):21-22.

3. Oropallo A, Beneat A, Rao A, Goodman E. Revisiting Heinz-Lippman disease as a complication of chronic venous insufficiency. Journal of Vascular Surgery Cases, Innovations and Techniques. 2023 Dec 29:101408.

Database Contact
Database Contact Data

Amit Rao
Email: arao3@northwell.edu

Alternate Contact

N/A

References of Studies Using/Describing Database

1. Oropallo A, Rao AS, Del Pin C, Ranire‐Maguire M, Mathew A. An objective comparative study of non‐surgical cleansing techniques and cleanser types in bacterial burden management. International Wound Journal. 2024 Feb;21(2):e14730.

2. Del Pin C, Rao A, Coles M, Del Rio MB, Alisha Oropallo A. Cisgender cellular tissue-based products improve wound healing. Wounds. 2024;36(1):21-22.

3. Oropallo A, Beneat A, Rao A, Goodman E. Revisiting Heinz-Lippman disease as a complication of chronic venous insufficiency. Journal of Vascular Surgery Cases, Innovations and Techniques. 2023 Dec 29:101408.