The Swedish National Parkinson's Disease Patient Registry (PARKreg) is a national quality registry that aims to contribute to Swedish Parkinson's care by spreading new knowledge through research and education. Established in 2010, the register currently covers approximately 15,681 people with Parkinson's (PwP), out of whom 10,735 are still alive and residing in Sweden (of an estimated total of 22,000 PwP). It includes demographic variables, diagnosis, treatments, and physician-reported clinical assessments of disease severity, and patient-reported outcomes. The information included reflects clinical practice and generally, visits are on a yearly basis; however, more frequent data entries are possible.
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