Established in 2010, the National Registry of Rare Kidney Diseases (RaDaR) is an initiative by the UK Kidney Association. Its purpose is to gather longitudinal data on patients diagnosed with specific rare kidney diseases. With 33,000 patients enrolled from 109 sites throughout the UK, RaDaR stands as the largest rare kidney disease registry globally.
To make sure their data are accurate and up to date, the RaDaR team works closely with kidney centres and laboratories around the UK. To enrich their data, they are also working with centres to get important genetic test results and specific blood marker results.
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