There are at least 1,400 people living with Cystic Fibrosis (CF) in Belgium, and the Belgian Cystic Fibrosis Registry (started in 1998) covers about 90-95% of CF patients living in Belgium. By collecting data on almost all patients with CF cared for in Belgium, the BCFR gives a good and quite complete picture of the epidemiology of the disease and the evolution of the health status of CF patients. Every year, the 7 CF reference centres collect demographic, clinical and social data from the patients they care for after having received their consent.
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