German Centre for Cancer Registry Data (ZfKD) (Germany)

Database Contact Data

1. Klaus Kraywinkel, MD, MSc (Epidemiology)
Centre for Cancer Registry Data at the Robert Koch-Institute
General-Pape-Str. 62-66
D-12101 Berlin
GERMANY
Phone: +49-30187543170
Email: k.kraywinkel@rki.de

2. Please complete the contact form at:
https://www.krebsdaten.de/Krebs/DE/Content/ZfKD/Kontakt/kontakt_node.html;jsessionid=675E5BAEEA85BCACA037D83E2CF2178B.internet122

Alternate Contact

Nina Buttmann-Schweiger, MD, MSc (Epidemiology)
Centre for Cancer Registry Data at the Robert Koch-Institute
General-Pape-Str. 62-66
D-12101 Berlin
GERMANY
Phone: +49-3018754-3266
Email: ButtmannN@rki.de

References of Studies Using/Describing Database

1. Gerber TS, Strobl S, Marx A, Roth W, Porubsky S. Epidemiology of thymomas and thymic carcinomas in the United States and Germany, 1999-2019. Front Oncol. 2024 Jan 9;13:1308989.

2. Vahl JM, Nagel G, Abou Kors T, Brand M, von Witzleben A, Sonntag M, Grages A, Theodoraki MN, Greve J, Denkinger M, Dallmeier D, Idel C, Stilgenbauer S, Hoffmann TK, Laban S. Regional outcome disparities in German head and neck cancer patients: Shorter survival in Eastern Germany. Cancer Med. 2023 Dec;12(23):21426-21435.

3. Vahl JM, Nagel G, Grages A, Brand M, von Witzleben A, Sonntag M, Theodoraki MN, Greve J, Aboukors T, Denkinger M, Dallmeier D, Idel C, Hoffmann TK, Laban S. Demographics and access to head and neck cancer care in rural areas compared to urban areas in Germany. Cancer Med. 2023 Sep;12(18):18826-18836.

4. Neumeyer S, Tanaka LF, Liang LA, Klug SJ. Epidemiology of cervical cancer in elderly women: Analysis of incidence, treatment, and survival using German registry data. Cancer Medicine. 2023 Aug;12(16):17284-95.

5. Kraywinkel K, Flegar L, Huber J, Groeben C. Krebsregister in Deutschland: Was bringt die Zukunft für die Urologie? [Cancer registries in Germany: what does the future hold for urology?] Aktuelle Urol. 2023 Jun;54(3):208-212. German.

6. Tanaka LF, Figueroa SH, Popova V, Klug SJ, Buttmann-Schweiger N. The Rising Incidence of Early-Onset Colorectal Cancer. Dtsch Arztebl Int. 2023 Feb 3;120(Forthcoming):59-64.

7. Köhler F, Reese L, Hendricks A, Kastner C, Müller S, Lock JF, Germer CT, Wiegering A. Low-grade mucinous neoplasms (LAMN) of the appendix in Germany between 2011 and 2018: a nationwide analysis based on data provided by the German Center for Cancer Registry Data (ZfKD) at the Robert Koch Institute (RKI). Langenbecks Arch Surg. 2022 Dec;407(8):3615-3622.

8. Abele M, Voggel S, Bremensdorfer C, Spix C, Erdmann F, Kuhlen M, Redlich A, Ebinger M, Lang P, Schneider DT, Brecht IB. Incidences and characteristics of primary lung malignancies in childhood in Germany: An analysis of population-based data from German cancer registries. Pediatr Blood Cancer. 2022 Sep;69(9):e29744.

9. Jansen L, Moratin J, Waldmann A, Zaoui K, Holleczek B, Nennecke A, Pritzkuleit R, Plinkert PK, Hoffmann J, Arndt V. Mundhöhlen- und Pharynxkarzinome: Inzidenz, Mortalität und Überleben in Deutschland [Oral and pharyngeal cancer: incidence, mortality, and survival in Germany]. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2021 Aug;64(8):941-950. German.

10. Bedir A, Abera SF, Efremov L, Hassan L, Vordermark D, Medenwald D. Socioeconomic disparities in head and neck cancer survival in Germany: a causal mediation analysis using population-based cancer registry data. Journal of cancer research and clinical oncology. 2021 May;147:1325-34.

Apr 13, 2021: Our first database profile from Egypt

The Egypt National Population-based Cancer Registry (NPCR) was established in 2007 and is the only source for cancer incidence in the whole of Egypt. It routinely collects patient data from peripheral population-based registries in the cancer centers of the 5 governorates. Data include patient demographics, primary tumor site, tumor morphology, stage at diagnosis, and follow-up for vital status from over one million patients.

Egypt National Population-based Cancer Registry (NPCR) (Egypt)

Database Contact Data

Amal Ibrahim, MD, DrPH
Emeritus Professor of Epidemiology
National Cancer Institute, Cairo University
Director National Cancer Registry Program 
13, Street 207 Maadi, 
Cairo 11728
EGYPT
Phone: +2 01006030480
Email: ibrahimamalsamy@gmail.com

Alternate Contact

N/A

References of Studies Using/Describing Database

1. Ibrahim AS, Mikhail NN, Khaled H. Current and future incidence of childhood cancer in Egypt: results of the national population-based cancer registry. J Cancer PrevCurr Res. 2018;9(6):316-21.

2. Ibrahim AS, Nazmi N. Cancer: the growing monster in Egypt. J Cancer Prev Curr Res. 2016;6(4):217.

3. Ibrahim AS, Mikhail NN. The evolution of cancer registration in Egypt: From proportions to population-based incidence rates. SECI Oncology. 2015; 3(1):23-43.

4. Azim HA, Ibrahim AS. Breast cancer in Egypt, China and Chinese: statistics and beyond. J Thorac Dis. 2014 Jul;6(7):864-6. 

5. Ibrahim AS, Khaled HM, Mikhail NN, Baraka H, Kamel H. Cancer incidence in egypt: results of the national population-based cancer registry program. J Cancer Epidemiol. 2014;2014:437971. 

6. Alieldin NH, Abo-Elazm OM, Bilal D, Salem SE, Gouda E, Elmongy M, Ibrahim AS. Age at diagnosis in women with non-metastatic breast cancer: Is it related to prognosis?. Journal of the Egyptian National Cancer Institute. 2014 Mar 1;26(1):23-30.

7. Soliman AS, Banerjee M, Lo AC, Ismail K, Hablas A, Seifeldin IA, Ramadan M, Omar HG, Fokuda A, Harford JB, Merajver SD. High proportion of inflammatory breast cancer in the Population-based Cancer Registry of Gharbiah, Egypt. Breast J. 2009 Jul-Aug;15(4):432-4. 

8. Barchana M, Ibrahim AS, Mikhail N. MOS Epidemiology Group Special report: cancer incidence in Mediterranean populations. Mediterranean Oncology Society Web site. 2009.

9. Ibrahim AS, Ismail K, Hablas A, Hussein H, Elhamzawy H, Ramadan M. Cancer in Egypt, Gharbiah. Triennial Report of 2000–2002. Gharbiah Population-Based Cancer Registry. 2007.

10. Ibrahim AS. Descriptive statistics of urogenital cancer in Egypt and Asian area. Tunis Med. 2005 Dec;83 Suppl 12:15-7. 

Apr 5, 2020: Two new National Health and Wellness Survey (NHWS) offerings from Kantar

Kantar's latest NHWS, from South Korea and Taiwan, are the latest to be profiled in B.R.I.D.G.E. TO DATA. These databases provide demographic data, disease-specific measures on >165 conditions (including symptoms & comorbidities), patient-reported outcomes (including quality of life), patient attitudes, medication and healthcare resource utilization. The survey aims to collect data to show how patients view their health, their attitudes and behaviors, outcomes and their unmet needs.

South Australian Cancer Registry (Australia)

Database Contact Data

SA Cancer Registry
Contact: Helen Thomas
Email: helen.thomas2@sa.gov.au

Alternate Contact

SA Cancer Registry Manager
Email: WellbeingSACCSACancerRegistry@sa.gov.au

References of Studies Using/Describing Database

1. Tempo JA, Sii S, Ischia J, Bolton DM, D'Onise K, Meng R, Watson DI, O'Callaghan M. Lessons from a population‐based bladder cancer registry: exploring why survival is not improving. BJU international. 2024 Jun;133(6):699-708.

2. Mashtoub S, Ullah S, Collinson A, Singh GR, Clark J, Leemaqz S, Paltiel O, Roder DM, Saxon B, McKinnon R, Pandol SJ. Childhood Cancer Incidence and Survival in South Australia and the Northern Territory, 1990–2017, with Emphasis on Indigenous Peoples. Cancers. 2024 May 29;16(11):2057.

3. Tiruye T, Roder D, FitzGerald LM, O'Callaghan M, Moretti K, Caughey GE, Beckmann K. Impact of comorbidities on prostate cancer‐specific mortality: A population‐based cohort study. The Prostate. 2024 May 26.

4. Venugopal K, Youlden D, Te Marvelde L, Meng R, Aitken J, Evans S, Kostadinov I, Nolan R, Thomas H, D'Onise K. Twenty years of melanoma in Victoria, Queensland, and South Australia (1997–2016). Cancer Epidemiology. 2023 Apr 1;83:102321.

5. Gheybi K, Buckley E, Vitry A, Roder D. Associations of advanced age with comorbidity, stage and primary subsite as contributors to mortality from colorectal cancer. Frontiers in Public Health. 2023;11.

6. Lal A, Gao L, Tan E, McCaffrey N, Roder D, Buckley E. Long-term benefits for lower socioeconomic groups by improving bowel screening participation in South Australia: A modelling study. Plos one. 2022 Dec 21;17(12):e0279177.

7. Clark RA, Lui S. Does Cancer Treatment Break Your Heart? A Linked Health Data Analysis of Thecharacteristics and Survival of Patients Who Have Developed Cardiovascular Disease Post Cancer Treatment. Circulation. 2022 Nov 8;146(Suppl_1):A14602-.

8. Gheybi K, Buckley E, Vitry A, Roder D. Occurrence of comorbidity with colorectal cancer and variations by age and stage at diagnosis. Cancer Epidemiology. 2022 Oct 1;80:102246.

9. Beckmann K, Kearney AM BJ, Yeung D, Hiwase D, Li M, Roder DM. Changes in five‐year survival for people with acute leukaemia in South Australia, 1980–2016. Medical Journal of Australia. 2022 Apr 4;216(6):296-302.

10. Lal A, McCaffrey N, Gold L, Roder D, Buckley E. Variations in utilisation of colorectal cancer services in South Australia indicated by MBS/PBS benefits: a benefit incidence analysis. Australian and New Zealand Journal of Public Health. 2022 Apr;46(2):237-42.

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