The Spanish Rare Diseases Patient Registry [Registro Nacional de Enfermedades Raras] is a registry of national scope which collects information on all persons diagnosed with any disease considered to be rare or of low prevalence. The objectives of the registry are to:
- Provide necessary information to contribute to the development of new treatments and to the prevention, diagnosis, prognosis and quality of life of rare disease patients and their families;
- Increase the knowledge of the needs of people affected by rare diseases in order to improve health and social plans.
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