Norwegian Population Register (Norway) **

Database Contact Data

For ways on contacting regarding the National Population Register please visit https://www.skatteetaten.no/en/contact/ (Options include postal mail, phone calls, chats, but no emails.)

Alternate Contact

For ways on contacting regarding the National Population Register please visit https://www.skatteetaten.no/en/contact/ (Options include postal mail, phone calls, chats, but no emails.)

References of Studies Using/Describing Database

1. Åsberg RE, Nilsen M, Hjermstad MJ, Reinertsen KV, Karlsen J, Giskeødegård GF, Reidunsdatter RJ. Norwegian general population normative data for the European Organization for Research and Treatment of Cancer questionnaires: the Quality of Life Questionnaire-Core 30, the Sexual Health Questionnaire QLQ-SHQ22 and the sexual domains of the QLQ-BR23/BR45. Eur J Cancer. 2023 Sep;190:112943.

2. Mansoor SM, Rabben T, Hisdal J, Jørgensen JJ. Eleven-Year Outcomes of a Screening Project for Abdominal Aortic Aneurysm (AAA) in 65-Year-Old Men. Vasc Health Risk Manag. 2023 Jul 17;19:459-467.

3. Aradhya S, Tegunimataka A, Kravdal Ø, Martikainen P, Myrskylä M, Barclay K, Goisis A. Maternal age and the risk of low birthweight and pre-term delivery: a pan-Nordic comparison. Int J Epidemiol. 2023 Feb 8;52(1):156-164.

4. Saeed M, Stene LC, Reisæter AV, Jenssen TG, Tell GS, Tapia G, Joner G, Skrivarhaug T. End-stage renal disease: incidence and prediction by coronary heart disease, and educational level. Follow-up from diagnosis of childhood-onset type 1 diabetes throughout Norway 1973-2017. Ann Epidemiol. 2022 Dec;76:181-187.

5. Skyrud K, Helgeland J, Lindahl AK, Augestad KM. Abdominal surgical trajectories associated with failure to rescue. A nationwide analysis. Int J Qual Health Care. 2022 Nov 17;34(4):mzac084.

6. Skinner MS, Sogstad M. Social and Gender Differences in Informal Caregiving for Sick, Disabled, or Elderly Persons: A Cross-Sectional Study. SAGE Open Nurs. 2022 Oct 9;8:23779608221130585.

7. Wondemu MY, Joranger P, Hermansen Å, Brekke I. Impact of child disability on parental employment and labour income: a quasi-experimental study of parents of children with disabilities in Norway. BMC Public Health. 2022 Sep 24;22(1):1813.

8. Nilsen TS, Gulseth HL, Daae A, Indseth T. Coronavirus immunisation abroad among foreign-born persons in Norway. Tidsskr Nor Laegeforen. 2022 Jun 27;142(10). English, Norwegian.

9. Kiadaliri A, Magnusson K, Turkiewicz A, Dell'Isola A, Runhaar J, Bierma-Zeinstra S, Englund M. Impact of the first wave of the COVID-19 pandemic on healthcare use in osteoarthritis: A population register-based study in Sweden. Osteoarthr Cartil Open. 2022 Jun;4(2):100252.

10. Forster RB, Strandberg RB, Bø Tibballs KL, Nøkleby K, Berg TJ, Iversen T, Hagen TP, Richardsen KR, Cooper J, Sandberg S, Løvaas KF, Nilsen RM, Iversen MM, Jenum AK, Buhl ESS. Cohort profile: Outcomes & Multi-morbidity In Type 2 diabetes (OMIT) - a national registry-based observational cohort with focus on care and treatment of key high-risk groups in Norway. BMJ Open. 2022 May 11;12(5):e054840. 

Finnish Register of Congenital Malformations (Finland) **

Database Contact Data

Dr. Sonja Kiuru-Kuhlefelt
Chief Physician
National Institute for Health and Welfare, Finland (THL)
Information Services
Register of Congenital Malformations
P.O. Box 30
00271 Helsinki
FINLAND
Email: sonja.kiuru-kuhlefelt@thl.fi
Phone: +358 29 524 7524

Alternate Contact

National Institute for Health and Welfare, Finland (THL)
PO Box 30
Mannerheimintie 166
FI-00271 Helsinki
FINLAND
Phone: +358 29 524 6000

References of Studies Using/Describing Database

1. Kinnunen J, Nikkinen H, Keikkala E, Mustaniemi S, Gissler M, Laivuori H, Eriksson JG, Kaaja R, Pouta A, Kajantie E, Vääräsmäki M. Gestational diabetes is associated with the risk of offspring's congenital anomalies: a register-based cohort study. BMC Pregnancy Childbirth. 2023 Oct 3;23(1):708. doi: 10.1186/s12884-023-05996-6. PMID: 37789251; PMCID: PMC10548673.

2. Kjerpeseth LJ, Cesta CE, Furu K, Engeland A, Gissler M, Gulseth HL, Karlstad Ø, Leinonen MK, Pazzagli L, Zoega H, Cohen JM. Metformin Versus Insulin and Risk of Major Congenital Malformations in Pregnancies With Type 2 Diabetes: A Nordic Register-Based Cohort Study. Diabetes Care. 2023 Aug 1;46(8):1556-1564.

3. Claridge H, Tan J, Loane M, Garne E, Barisic I, Cavero-Carbonell C, Dias C, Gatt M, Jordan S, Khoshnood B, Kiuru-Kuhlefelt S, Klungsoyr K, Mokoroa Carollo O, Nelen V, Neville AJ, Pierini A, Randrianaivo H, Rissmann A, Tucker D, de Walle H, Wertelecki W, Morris JK. Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies. BMJ Open. 2023 Jul 27;13(7):e071687. doi: 10.1136/bmjopen-2023-071687. PMID: 37500278; PMCID: PMC10387628.

4. Raitio A, Heiskanen S, Syvänen J, Leinonen MK, Kemppainen T, Löyttyniemi E, Ahonen M, Gissler M, Helenius I. Maternal Risk Factors for Congenital Vertebral Anomalies: A Population-Based Study. J Bone Joint Surg Am. 2023 Jul 19;105(14):1087-1092.

5. Cohen JM, Alvestad S, Cesta CE, Bjørk MH, Leinonen MK, Nørgaard M, Einarsdóttir K, Engeland A, Gissler M, Karlstad Ø, Klungsøyr K, Odsbu I, Reutfors J, Selmer RM, Tomson T, Ulrichsen SP, Zoega H, Furu K. Comparative Safety of Antiseizure Medication Monotherapy for Major Malformations. Ann Neurol. 2023 Mar;93(3):551-562.

6. Kuu-Karkku L, Suominen A, Svedström-Oristo AL. Craniofacial microsomia - more than a structural malformation. Orthod Craniofac Res. 2023 Feb;26(1):117-122.

7. Tauriainen A, Raitio A, Tauriainen T, Vanamo K, Sankilampi U, Helenius I, Hyvärinen A. Comparison of three risk stratification scores in gastroschisis neonates: gastroschisis prognostic score, gastroschisis risk stratification index and complex gastroschisis. Pediatr Surg Int. 2022 Oct;38(10):1377-1383.

8. Heiskanen S, Syvänen J, Helenius I, Kemppainen T, Löyttyniemi E, Gissler M, Raitio A. Increasing Prevalence and High Risk of Associated Anomalies in Congenital Vertebral Defects: A Population-based Study. J Pediatr Orthop. 2022 May-Jun 01;42(5):e538-e543.

9. Ellfolk M, Leinonen MK, Gissler M, Kiuru-Kuhlefelt S, Saastamoinen L, Malm H. Second-generation antipsychotic use during pregnancy and risk of congenital malformations. Eur J Clin Pharmacol. 2021 Nov;77(11):1737-1745.

10. Raitio A, Kalliokoski N, Syvänen J, Harju S, Tauriainen A, Hyvärinen A, Gissler M, Helenius I, Sankilampi U. High incidence of inguinal hernias among patients with congenital abdominal wall defects: a population-based case-control study. Eur J Pediatr. 2021 Aug;180(8):2693-2698.

Medical Birth Register of Denmark (Denmark)

Database Contact Data

Mats Christian Westphal Thrane
The Danish Health Data Authority
Ørestads Boulevard 5
DK-2300 Copenhagen S
DENMARK
Email: MCWT@sundhedsdata.dk

Alternate Contact

The Danish Health Data Authority
Ørestads Boulevard 5
2300 Copenhagen S
DENMARK
Phone: (+45) 7221 6800
Email: kontakt@sundhedsdata.dk

References of Studies Using/Describing Database

1. Wiegers HMG, Körmendiné Farkas D, Horváth-Puhó E, Middeldorp S, van Es N, Sørensen HT. Incidence and prognosis of superficial vein thrombosis during pregnancy and the post-partum period: a Danish nationwide cohort study. Lancet Haematol. 2023 May;10(5):e359-e366.

2. Yang F, Janszky I, Gissler M, Cnattingius S, Roos N, Miao M, Yuan W, Li J, László KD. Preterm Birth, Small for Gestational Age, and Large for Gestational Age and the Risk of Atrial Fibrillation Up to Middle Age. JAMA Pediatr. 2023 Apr 24:e230083.

3. de Knegt VE, Hedley PL, Hedermann G, Wilstrup C, Bækvad-Hansen M, Thagaard IN, Hjalgrim H, Kanters J, Melbye M, Hougaard DM, Hviid A, Krebs L, Breindahl M, Lausten-Thomsen U, Christiansen M. The impact of the COVID-19 lockdown on birthweight among singleton term birth in Denmark. PLoS One. 2023 Apr 20;18(4):e0283909.

4. Lykke MR, Sørensen HT, Lawn JE, Horváth-Puhó E. Long-term Risk of Epilepsy Following Invasive Group B Streptococcus Disease in Neonates in Denmark. JAMA Netw Open. 2023 Apr 3;6(4):e239507.  

5. Li M, Huang C, Yang W, Lee PMY, Liu Y, Lin R, Qin G, Yu Y, Zhou X, Li J. Evaluation of Hypertensive Disorder of Pregnancy and High Refractive Error in Offspring During Childhood and Adolescence. JAMA Netw Open. 2023 Apr 3;6(4):e238694.

6. Luan M, Yang F, Miao M, Yuan W, Gissler M, Arkema EV, Lu D, Li J, László KD. Rheumatoid arthritis and the risk of postpartum psychiatric disorders: a Nordic population-based cohort study. BMC Med. 2023 Apr 3;21(1):126.

7. Liew Z, Meng Q, Yan Q, Schullehner J, Hansen B, Kristiansen SM, Voutchkova DD, Olsen J, Ersbøll AK, Ketzel M, Raaschou-Nielsen O, Ritz BR. Association Between Estimated Geocoded Residential Maternal Exposure to Lithium in Drinking Water and Risk for Autism Spectrum Disorder in Offspring in Denmark. JAMA Pediatr. 2023 Apr 3:e230346.

8. Spangmose AL, Jørgensen MH, Jakobsen C, Wewer V, Rod NH, Ingels H, Pinborg A, Malham M. Pre- and perinatal exposures associated with developing pediatric-onset immune-mediated inflammatory disease: A Danish nation-wide cohort study. J Autoimmun. 2023 Apr;136:103032.

9. Chen H, Janszky I, Rostila M, Wei D, Yang F, Li J, László KD. Bereavement in childhood and young adulthood and the risk of atrial fibrillation: a population-based cohort study from Denmark and Sweden. BMC Med. 2023 Jan 5;21(1):8.

10. Bliddal M, Broe A, Pottegård A, Olsen J, Langhoff-Roos J. The Danish Medical Birth Register. Eur J Epidemiol. 2018 Jan;33(1):27-36.

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