National Registry of Rare Kidney Diseases (RaDaR) (United Kingdom)

Database Contact Data

Professor Danny Gale  
Director 
RaDaR Team
UNITED KINGDOM
Email: d.gale@ucl.ac.uk

Alternate Contact

Dr. Zoe Plummer 
Senior Project Manager 
RaDaR Team
UNITED KINGDOM
Email: zoe.plummer@ukkidney.org

References of Studies Using/Describing Database

1. Pitcher D, Braddon F, Hendry B, Mercer A, Osmaston K, Saleem MA, Steenkamp R, Wong K, Turner AN, Wang K, Gale DP, Barratt J. Long-Term Outcomes in IgA Nephropathy. Clin J Am Soc Nephrol. 2023 Jun 1;18(6):727-738.

2. Wong K, Pitcher D, Braddon F, Downward L, Steenkamp R, Masoud S, Annear N, Barratt J, Bingham C, Coward RJ, Chrysochou T. Description and Cross-Sectional Analyses of 25,880 Adults and Children in the UK National Registry of Rare Kidney Diseases Cohort. Kidney International Reports. 2024 May 9; 2067–2083.

3. Wong K, Pitcher D, Braddon F, Downward L, Steenkamp R, Annear N, Barratt J, Bingham C, Chrysochou C, Coward RJ, Game D, Griffin S, Hall M, Johnson S, Kanigicherla D, Karet Frankl F, Kavanagh D, Kerecuk L, Maher ER, Moochhala S, Pinney J, Sayer JA, Simms R, Sinha S, Srivastava S, Tam FWK, Turner AN, Walsh SB, Waters A, Wilson P, Wong E, Taylor CM, Nitsch D, Saleem M, Bockenhauer D, Bramham K, Gale DP; RaDaR consortium. Effects of rare kidney diseases on kidney failure: a longitudinal analysis of the UK National Registry of Rare Kidney Diseases (RaDaR) cohort. Lancet. 2024 Mar 30;403(10433):1279-1289.

4. Masoud S, Wong K, Downward L, Pitcher D, Webb NJ, Proudfoot C, RaDaR Consortium, Wong EK, Gale DP. Clinical Predictors of Long-term Outcomes in C3 Glomerulopathy and Immune-Complex Membranoproliferative Glomerulonephritis within the UK RaDaR Registry. medRxiv. 2024:2024-02.

Danish Multiple Sclerosis Registry (Denmark)

Database Contact Data

Melinda Magyari, MD, PhD
Associate Professor
Danish Multiple Sclerosis Center
Copenhagen University Hospital
Rigshospitalet Glostrup
Valdemar Hansens Vej 2, Entrance 8, Second floor
DK-2600 Glostrup
DENMARK
Email: melinda.magyari.01@regionh.dk
Cell: + 45 21 68 98 25

Alternate Contact

Jenni Dalsgaard
Research Administrator
The Danish Multiple Sclerosis Registry
Department of Neurology
Rigshospitalet Glostrup
Valdemar Hansens Vej 2, Entrance 8, Second floor
DK-2600 Glostrup
DENMARK
E-mail 1: jenni.lilian.dalsgaard@regionh.dk
Email 2: scleroseregisteret.rigshospitalet@regionh.dk
Phone: +45 3863 2750

References of Studies Using/Describing Database

1. Magyari M, Koechlin A, Duclos A, Kopp TI, Allaoui EM, Polazzi S, Seeldrayers P, Autier P. Long-Term Safety of Teriflunomide in Multiple Sclerosis Patients: Results of Prospective Comparative Studies in Three European Countries. Pharmacoepidemiol Drug Saf. 2024 Jul;33(7):e5866.

2. Mahler MR, Magyari M, Pontieri L, Elberling F, Holm RP, Weglewski A, Poulsen MB, Storr LK, Bekyarov PA, Illes Z, Kant M, Sejbaek T, Stilund ML, Rasmussen PV, Brask M, Urbonaviciute I, Sellebjerg F. Prognostic factors for disease activity in newly diagnosed teriflunomide-treated patients with multiple sclerosis: a nationwide Danish study. J Neurol Neurosurg Psychiatry. 2024 Apr 3:jnnp-2023-333265. doi: 10.1136/jnnp-2023-333265. Epub ahead of print. PMID: 38569873.

3. Papp V, Magyari M, Möller S, Sellebjerg F, Battistini JL, Svendsen KB, Søndergaard HB, Nilsson AC, Illes Z. Mortality of the Danish Nationwide AQP4 Antibody-Seropositive Neuromyelitis Optica Spectrum Disorder Patient Cohort. Neurology. 2024 Mar 12;102(5):e209147.

4. Framke E, Jennum PJ, Thygesen LC, Magyari M. Sleep disorders and sleep disturbances in persons with multiple sclerosis: A population-based matched case-control study in Denmark. Neuroepidemiology. 2024 Mar 21. doi: 10.1159/000538307. Epub ahead of print. PMID: 38513627.

5. Framke E, Thygesen LC, Malmborg M, Schou M, Sellebjerg F, Magyari M. Risk of cardiovascular disease in patients with multiple sclerosis treated with fingolimod compared to natalizumab: A nationwide cohort study of 2095 patients in Denmark. Mult Scler. 2024 Feb;30(2):184-191.

6. Koch-Henriksen NI, Thygesen LC, Sørensen PS, Magyari M. Using instrumental variables to correct for bias in real-world cohort studies of the effects of disease-modifying treatment in MS. Mult Scler. 2024 Jan;30(1):113-120.

7. Holm RP, Wandall-Holm MF, Sellebjerg F, Magyari M. Comorbidity in the aging population with multiple sclerosis: a Danish nationwide study. Front Neurol. 2023 Nov 24;14:1297709.

8. Butzkueven H, Hillert J, Soilu-Hänninen M, Ziemssen T, Kuhle J, Wergeland S, Magyari M, Berger JR, Moore N, Aydemir A, Bezemer I, Sabidó M. The CLARION study: first report on safety findings in patients newly initiating treatment with cladribine tablets or fingolimod for multiple sclerosis. Curr Med Res Opin. 2023 Oct;39(10):1367-1374.

9. Kontaxis S, Laporta E, Garcia E, Martinis M, Leocani L, Roselli L, Buron MD, Guerrero AI, Zabala A, Cummins N, Vairavan S, Hotopf M, Dobson RJB, Narayan VA, La Porta ML, Costa GD, Magyari M, Sørensen PS, Nos C, Bailon R, Comi G, On Behalf Of The Radar-Cns Consortium. Automatic Assessment of the 2-Minute Walk Distance for Remote Monitoring of People with Multiple Sclerosis. Sensors (Basel). 2023 Jun 29;23(13):6017.

10. Wandall-Holm MF, Holm RP, Pontieri L, Sellebjerg F, Magyari M. Socioeconomic status of the elderly MS population compared to the general population: a nationwide Danish matched cross-sectional study. Front Neurol. 2023 Jun 13;14:1214897. 

Sep 17, 2024: Tutorial Update – How to conduct searches on B.R.I.D.G.E. TO DATA®

Our tutorial “How to Conduct a Search” has been updated to include our latest enhancements, to better serve pharmaceutical companies, database consultants, epidemiologists, and public health professionals. This tutorial offers an improved guide on the basics of searching for database profiles using keywords and/or defined criteria and explains how to save individual searches for future reference.

Sep 10, 2024: New prescription registry from Denmark added

Starting in 2003, the Danish National Prescription Registry includes individual-level data on prescriptions filled by Danish residents at community pharmacies. The Danish community pharmacy sector consists of 314 large pharmacies, on average covering about 17,000 residents and serving about 600 customers per day. Data are received from records in the electronic dispensing systems of community pharmacies. The Registry contains 46 variables that characterize each redeemed prescription.

Sep 5, 2024: Expanding Horizons: 475 Population Database Profiles from 65 Countries and Growing

Discover the wealth of global healthcare data at B.R.I.D.G.E. TO DATA®, where we proudly feature >475 database profiles from 65 countries. Our platform is continuously evolving, with new profiles being added and existing ones regularly updated to ensure the most accurate and comprehensive information.

Danish National Prescription Registry (Denmark) **

Database Contact Data

Statistics Denmark
Sejrøgade 11
DK-2100 Copenhagen
DENMARK
Phone: + 45 3917 3917
Fax:  + 45 3917 3999
E-mail: dst@dst.dk

Alternate Contact

Forskningsservice
Phone: +45 39 17 31 30
Mail: forskningsservice@dst.dk

References of Studies Using/Describing Database

1. Duus AH, Hannibal CG, Baandrup L, Zheng G, Galanakis M, Maltesen T, Hertzum-Larsen R, Mørch LS, Kjær SK. Prediagnostic use of menopausal hormone therapy and long-term survival of localized epithelial ovarian cancer: The Extreme study. Int J Cancer. 2024 Jul 1;155(1):19-26.

2. Christensen J, Trabjerg B, Dreier JW. Correlation of drug dose estimated from national prescription registers with mean blood level of antiseizure medication in pregnancy. Pharmacoepidemiol Drug Saf. 2024 Jun;33(6):e5811.

3. Andersen MA, Gregersen R, Petersen TS, Wang JN, Petersen J, Jimenez-Solem E. Association Between First-time Neurologic Events and Metronidazole Treatment: A Case-time Control Study. Clin Ther. 2024 Apr;46(4):307-312.

4. Østergaard L, Olesen JB, Petersen JK, Nielsen LS, Kristensen SL, Schou M, Køber L, Fosbøl E. Arterial Thromboembolism in Patients With Atrial Fibrillation and CHA2DS2-VASc Score 1: A Nationwide Study. Circulation. 2024 Mar 5;149(10):764-773.

5. Rosenqvist TW, Wium-Andersen MK, Wium-Andersen IK, Jørgensen MB, Osler M. Long-Term Use of Benzodiazepines and Benzodiazepine-Related Drugs: A Register-Based Danish Cohort Study on Determinants and Risk of Dose Escalation. Am J Psychiatry. 2024 Mar 1;181(3):246-254.

6. Mejldal A, Nielsen PAS, Finn SW. Seasonal variations in treatment seeking for Alcohol Use Disorder in the total Danish population. J Stud Alcohol Drugs. 2024 Mar 1. doi: 10.15288/jsad.23-00269. Epub ahead of print. PMID: 38426666.

7. Johansson MS, Pottegård A, Søndergaard J, Englund M, Grønne DT, Skou ST, Roos EM, Thorlund JB. Use of prescribed analgesics before and after exercise therapy and patient education in patients with knee or hip osteoarthritis. Rheumatol Int. 2024 Feb;44(2):319-328.

8. Nemeth B, Smeets M, Pedersen AB, Kristiansen EB, Nelissen R, Whyte M, Roberts L, de Lusignan S, le Cessie S, Cannegieter S, Arya R. Development and validation of a clinical prediction model for 90-day venous thromboembolism risk following total hip and total knee arthroplasty: a multinational study. J Thromb Haemost. 2024 Jan;22(1):238-248.

9. Harbi H, Pottegård A. Validation of the "Indication for Use" (INDO) Variable in the Danish National Prescription Registry. Epidemiology. 2024 Jan 1;35(1):1-6.

10. Pottegård A, Schmidt SAJ, Wallach-Kildemoes H, Sørensen HT, Hallas J, Schmidt M. Data Resource Profile: The Danish National Prescription Registry. Int J Epidemiol. 2017 Jun 1;46(3):798-798f. 

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