National Cancer Registry (NCRI) (Ireland)
Database Contact Data
National Cancer Registry Ireland
Building 6800 Cork Airport Business Park
Cork, T12CDF7
IRELAND
Phone: +353 (0) 21 4310814
Email: ncr_info@ncri.ie
Alternate Contact
National Cancer Registry Ireland
Building 6800 Cork Airport Business Park
Cork, T12CDF7
Phone: +353 (0) 21 4310814
Email via Contact Form: https://www.ncri.ie/contact
References of Studies Using/Describing Database
1. McCabe M, Rossi S, Cerza F, Massimino M, Gianno F, Spycher BD, Marcos-Gragera R, Bennett D, Lasalvia P, Didonè F, El Karoui NJ, Ragusa R, Mayer-da-Silva A, Mousavi SM, Trama A; EUROCARE-6 WG. Survival of European adolescents and young adults diagnosed with central nervous system tumours and comparison with younger and older age groups: EUROCARE-6 results. Eur J Cancer. 2025 Sep 9;227:115661.
2. Botta L, Capocaccia R, Bernasconi A, Rossi S, Galceran J, Maso LD, Lepage C, Molinié F, Bouvier AM, Marcos-Gragera R, Vener C, Guevara M, Murray D, Ragusa R, Gatta G, Jooste V, Wg TE. The impact of cancer survivors' extra risk of non-cancer mortality on net survival estimation. Am J Epidemiol. 2025 Aug 19:kwaf148. doi: 10.1093/aje/kwaf148. Epub ahead of print.
3. O'Driscoll J, Tierney PA, McDevitt J, Brennan A, Redaniel MT, Zhang M, Bennett K, Murray D, Mullooly M. Examining the impact of the COVID-19 pandemic on invasive breast cancer incidence in Ireland: A population-based study. Cancer Epidemiol. 2025 Aug;97:102864.
4. Bernasconi A, Toss A, Zattarin E, Mousavi SM, Blum M, Kuehni CE, Katalinic A, Trallero J, Rapiti E, Maso LD, Botta L, Rossi S, Peccatori F, Trama A; EUROCARE-6 Working Group. Prognosis of Breast Cancer in European female adolescents and young adults (AYAs): EUROCARE-6 retrospective cohort results. Breast. 2025 Aug;82:104472.
5. Ssenyonga N, Stiller CA, Marcos-Gragera R, Kuehni CE, Saint-Jacques N, Bulliard JL, Redaniel MT, Nakata K, Schwartz S, De P, Ragusa R, Troussard X, Curado MP, Girardi F, Maynadié M, Valkov M, Guilloteau A, Lima C, Coleman MP, Allemani C; CONCORD Working Group. Conditional survival of children, adolescents and young adults (0-24 years) diagnosed with leukaemia during 2000-2014 world-wide: (CONCORD-3). Eur J Cancer. 2025 Jul 25;225:115445.
6. Trama A, Geerdes EE, Demuru E, De Angelis R, Karim-Kos HE, Troussard X, Bennett D, Marcos-Gragera R, Kuehni CE, Liu H, Bernasconi A, Vener C, Guevara M, Zwaan CM, Mayer-da-Silva A, Paapsi K, Ragusa R, Smith OP; EUROCARE-6 Working Group. Survival of European children, adolescents and young adults diagnosed with haematological malignancies in the period 2000-2013: Results from EUROCARE-6, a population-based study. Eur J Cancer. 2025 Jun 3;222:115336.
7. Botta L, Capocaccia R, Vener C, Bernasconi A, Trama A, Didoné F, Demuru E, De Angelis R, Rossi S, Mousavi SM, Peters F, Bennet D, Mayer-da-Silva A, Jooste V; EUROCARE-6 WG. Estimating cure and risk of death from other causes of adolescent and young adult cancer patients in Europe. Eur J Cancer. 2025 Jun 3;222:115443.
8. Gatta G, Calleja-Agius J, Sandrucci S, Bennet D, Azzopardi MJ, Capocaccia R; EUROCARE WG. Incidence and survival of rare female genital tract cancers in Europe: The EUROCARE-6 study. Eur J Surg Oncol. 2025 Apr;51(4):109996.
9. Zhang M, Tierney P, Brennan A, Murray D, Mullooly M, Bennett K. Modelling the impact of the COVID-19 pandemic on cancer stage migration and excess mortality in Ireland. Prev Med Rep. 2025 Mar 1;52:103020.
10. Trama A, Lasalvia P, Stark D, McCabe MG, van der Graaf W, Gaspar N, Metayer L, Strauss SJ, Ragusa R, Guevara M, Bennett D, Dal Maso L, Batllés AMV, Schindera C, Mousavi SM, Cerza F, Botta L, Ferrari A, Provenzano S; EUROCARE-6 Working Group. Incidence and survival of European adolescents and young adults diagnosed with sarcomas: EUROCARE-6 results. Eur J Cancer. 2025 Feb 25;217:115212.
Jun 21, 2023: Three new Nordic profiles have been added
We are excited to add three new profiles from Denmark and Sweden to our resource of over 400 healthcare database profiles.
Swedish Cystic Fibrosis Patient Registry (Sweden) **
Database Contact Data
For questions relating to research purposes, or when planning research projects to reconcile variables, time periods and data access, etc., contact the data controller:
Anders Lindblad, MD
Queen Silvia Childrens Hospital
416 85 Gothenburg
SWEDEN
Phone: +46 31 343 4336
Email: anders.lindblad@vgregion.se
If you cannot reach the database manager, you may contact the Swedish Cystic Fibrosis Registry by completing the contact form at: https://www.cf-registret.se/kontakt
Alternate Contact
Link to application form for data from the CF register for research purposes:
https://cf-registret.se/onewebmedia/Formula%CC%88r_Registeruppg.pdf
References of Studies Using/Describing Database
1. Nilsson M. P325 Nutritional status with specific focus in fat soluble vitamins in Swedish patients with cystic fibrosis–a registry study. Journal of Cystic Fibrosis. 2025 Jun 1;24:S169.
2. Svedberg M, Holmberg L, Imberg H. P123 Evaluating pulmonologists' accuracy in visually estimating lung function trends in cystic fibrosis. Journal of Cystic Fibrosis. 2025 Jun 1;24:S105.
3. Krantz C. WS13. 06Absence of neonatal screening for cystic fibrosis in Sweden causes delay in effective treatment. Journal of Cystic Fibrosis. 2025 Jun 1;24:S27.
4. Svedberg M, Hagel E, Kranz C, Imberg H. P112 Real-time estimation of individual long-and short-term lung functions trends in persons with cystic fibrosis within the Swedish cystic fibrosis registry. Journal of Cystic Fibrosis. 2024 Jun 1;23:S119.
5. Al Shakirchi M, Sorjonen K, Hjelte L, Klingspor L, Bergman P, Ericson P, Svedberg M, Lindberg U, Hansen C, Monestrol ID. Impact of lumacaftor/ivacaftor on the bacterial and fungal respiratory pathogens in cystic fibrosis: A prospective multicenter cohort study in Sweden. Therapeutic Advances in Respiratory Disease. 2024 May;18:17534666241254090.
6. Lindblad A, Monestrol I, Gilljam M, Krantz C, McGarry LJ, Banefelt J, Aldvén M. Clinical, economic, and societal burden of cystic fibrosis and the impact of the CFTR modulator, lumacaftor/ivacaftor: an assessment using linked registry data in Sweden. J Med Econ. 2024 Jan-Dec;27(1):897-906.
7. Svedberg M, Imberg H, Gustafsson PM, Tiddens H, Davies G, Lindblad A. Longitudinal lung clearance index and association with structural lung damage in children with cystic fibrosis. Thorax. 2023 Feb;78(2):176-182.
8. Kowalik A, de Monestrol I, Sorjonen K, Brockow K, Gülen T. Antibiotic hypersensitivity in cystic fibrosis - Low frequency of anaphylaxis over 16 000 courses. Br J Clin Pharmacol. 2022 Nov;88(11):4845-4853.
9. Blomquist A, Inghammar M, Al Shakirchi M, Ericson P, Krantz C, Svedberg M, Lindblad A, Påhlman LI. Persistent Aspergillus fumigatus infection in cystic fibrosis: impact on lung function and role of treatment of asymptomatic colonization-a registry-based case-control study. BMC Pulm Med. 2022 Jul 5;22(1):263.
10. Hortal CR, Wilhelmsson S, Törnberg A, Lannefors L, Hoel L, Ersson K, Dennersten-Kvist U, Wallin K, Mårtensson M, Hedborg A. WS16. 6 Decreased performance of airway clearance and physical exercise with age in the Swedish cystic fibrosis population-what’s the solution?. Journal of Cystic Fibrosis. 2020 Jun 1;19:S28.
National Patient Register (Denmark) **
Database Contact Data
The Danish Health Data Agency
Ørestads Boulevard 5
2300 Copenhagen S
DENMARK
Phone: +45 7221 6800
Email 1: LPRdata@sundhedsdata.dk
Email 2: kontakt@sundhedsdata.dk
Alternate Contact
1. If you have questions about patient registration in the National Patient Register, you can write to: patientregistrering@sundhedsdata.dk.
2. If you have questions about Research services, please email: forskerservice@sundhedsdata.dk
References of Studies Using/Describing Database
1. Sirirungreung A, Hansen J, Ritz B, Heck JE. Association between medically diagnosed postnatal infection and childhood cancers: A matched case-control study in Denmark, 1978 to 2016. Int J Cancer. 2023 May 27. doi: 10.1002/ijc.34604. Epub ahead of print. PMID: 37243370.
2. Hammerbak-Andersen M, Klarskov N, Husby KR. Colpocleisis: reoperation risk and risk of uterine and vaginal cancer: A nationwide cohort study. Int Urogynecol J. 2023 May 22. doi: 10.1007/s00192-023-05566-6. Epub ahead of print. PMID: 37212831.
3. Jensen TL, Tejlbo Frost M, Dalhoff K, Studsgaard Petersen T. Repeated poisonings in Denmark - a nationwide study. Clin Toxicol (Phila). 2023 May 12:1-8.
4. Okholm SH, Nagy D, Körmendiné Farkas D, Fuglsang CH, Troelsen FS, Henderson VW, Sørensen HT. Non-Traumatic Subdural Hematoma and Cancer: A Cohort Study. Clin Epidemiol. 2023 May 8;15:629-633.
5. Placido D, Yuan B, Hjaltelin JX, Zheng C, Haue AD, Chmura PJ, Yuan C, Kim J, Umeton R, Antell G, Chowdhury A, Franz A, Brais L, Andrews E, Marks DS, Regev A, Ayandeh S, Brophy MT, Do NV, Kraft P, Wolpin BM, Rosenthal MH, Fillmore NR, Brunak S, Sander C. A deep learning algorithm to predict risk of pancreatic cancer from disease trajectories. Nat Med. 2023 May;29(5):1113-1122.
6. Thaarup M, Nielsen PB, Olesen AE, Bitsch Poulsen M, Larsen TB, Wittström F, Overvad TF. Positive Predictive Value of Non-Traumatic Bleeding Diagnoses in the Danish National Patient Register. Clin Epidemiol. 2023 Apr 28;15:493-502.
7. Nielsen SK, Nouhravesh N, Jensen MH, Jensen RFG, Klein MF, Saghir Z, Nielsen D, Schou M, Lamberts M. The Validity of a New Procedure-Based Definition of Cancer Status in Patients with Breast-, Lung- and Colorectal Cancer in the Danish National Patient Registry. Clin Epidemiol. 2023 Apr 25;15:483-491.
8. Nunez Y, Balalian A, Parks RM, He MZ, Hansen J, Raaschou-Nielsen O, Ketzel M, Khan J, Brandt J, Vermeulen R, Peters S, Weisskopf MG, Re DB, Goldsmith J, Kioumourtzoglou MA. Exploring Relevant Time Windows in the Association Between PM2.5 Exposure and Amyotrophic Lateral Sclerosis: A Case-Control Study in Denmark. Am J Epidemiol. 2023 Apr 21:kwad099. doi: 10.1093/aje/kwad099. Epub ahead of print. PMID: 37092253.
9. Hasselstrøm Jensen J, Vestergaard P, Hasselstrøm Jensen M. Association between Glucose-Lowering Treatments and Risk of Diabetic Retinopathy in People with Type 2 Diabetes: A Nationwide Cohort Study. Curr Drug Saf. 2023 Apr 20. doi: 10.2174/1574886318666230420084701. Epub ahead of print. PMID: 37078347.
10. Lauritzen AD, Berg T, Jensen MB, Lillholm M, Knoop A. Identifying recurrent breast cancer patients in national health registries using machine learning. Acta Oncol. 2023 Apr;62(4):350-357.
Danish Cause of Death Register (Denmark) **
Database Contact Data
The Danish Health Data Agency
Ørestads Boulevard 5
2300 Copenhagen S
DENMARK
Phone: +45 7221 6800
Email: kontakt@sundhedsdata.dk
Alternate Contact
For death certificates and reporting, email didsattest@sundhedsdata.dk
References of Studies Using/Describing Database
1. Pedersen JE, Petersen KU, Andersen MHG, Saber AT, Vogel U, Ebbehøj NE, Jensen TK, Wils RS, Bonde JP, Hansen J. Mortality in firefighters: extended follow-up of a Danish cohort, 1970-2021. Int Arch Occup Environ Health. 2025 Aug;98(6):525-535.
2. Egeskov-Cavling AM, Hansen CL, Johannesen CK, Lindegaard B, Bhatt S, Viboud C, Fischer TK. Excess mortality and hospitalisations associated with respiratory syncytial virus, influenza, and COVID-19 among adults in Denmark (2015-2024): a modelling study. Lancet Reg Health Eur. 2025 Jul 18;55:101396.
3. Chiang SC, Bai S, Linden-Carmichael AN. Timing of Adolescent Alcohol Initiation and Mental Health Problems in Adulthood: The Role of Parent-Adolescent Closeness. Psychol Rep. 2025 Jul 7:332941251358489. doi: 10.1177/00332941251358489. Epub ahead of print.
4. Thygesen LC, Klitgaard MB, Sabers A, Kjellberg J, Søndergaard J, Sørensen J, Sonne M, Juel K, Michelsen SI. Potentially avoidable mortality among adults with intellectual disability. Eur J Public Health. 2024 Dec 1;34(6):1225-1231.
5. Ueda P, Söderling J, Wintzell V, Svanström H, Pazzagli L, Eliasson B, Melbye M, Hviid A, Pasternak B. GLP-1 Receptor Agonist Use and Risk of Suicide Death. JAMA Intern Med. 2024 Nov 1;184(11):1301-1312. doi: 10.1001/jamainternmed.2024.4369. Erratum in: JAMA Intern Med. 2024 Nov 1;184(11):1396.
6. Stochholm K, Holmgård C, Davis SM, Gravholt CH, Berglund A. Incidence, prevalence, age at diagnosis, and mortality in individuals with 45,X/46,XY mosaicism: A population-based registry study. Genet Med. 2024 Jan;26(1):100987.
7. Kann AE, Jepsen P, Madsen LG, West J, Askgaard G. Cause-specific mortality in patients with alcohol-related liver disease in Denmark: a population-based study. The Lancet Gastroenterology & Hepatology. 2023 Nov 1;8(11):1028-34.
8. Holmager TL, Nymand Lophaven S, Mortensen LH, Lynge E. Temporal trends in cause-specific mortality in a rural-provincial area of Denmark, Lolland-Falster, 1970–2018. Scandinavian Journal of Public Health. 2023 Aug;51(6):853-61.
9. Erlangsen A, Jacobsen AL, Ranning A, Delamare AL, Nordentoft M, Frisch M. Transgender identity and suicide attempts and mortality in Denmark. Jama. 2023 Jun 27;329(24):2145-53.
10. Deding U, Kaalby L, Steele R, Al-Najami I, Kobaek-Larsen M, Plantener E, Madsen JB, Madsen JS, Bjørsum-Meyer T, Baatrup G. Faecal haemoglobin concentration predicts all-cause mortality. Eur J Cancer. 2023 May;184:21-29.
Jun 13, 2023: We allow users to upgrade their subscription ANY TIME of the year
If you have one subscription level (e.g., 5 users) and want to add more users, we can upgrade your subscription level that allows more users (e.g., up to 10 or Unlimited users).
Jun 7, 2023: Switching companies? Take your BTD access with you…
It’s possible for a B.R.I.D.G.E.
May 31, 2023: The Norwegian Cause of Death Registry profile has just been added
This registry collects data on deaths by age, sex, cause, place of death, and place of residence for Norway. It contains digitized cause of death data dating back to 1951. Electronic death certificates were introduced in 2018, and electronic delivery is mandatory since January 1, 2022. The registry collects death certificates for all deaths that occur in the country, including deceased who are not registered as inhabitants of Norway. It also registers the deaths of Norwegians who die abroad.