Sep 28, 2021: Our 1st profile of an Abortion Registry

The Estonian Abortion Registry is run by the National Institute for Health Development. Information about all induced abortions is collected in the central digital Abortion Registry since 1996. Data are collected from an Abortion Card which is filled in for every abortion that has taken place in a health care institution by all health care institutions (incl. private doctors) who do abortions or provide medical care to women who have had an abortion.

Estonian Abortion Registry (Estonia)

Database Contact Data

Kärt Allvee
Head of Estonian Abortion Registry
National Institute for Health Development
ESTONIA
Phone: +372 659 3993
Email: kart.allvee@tai.ee

Alternate Contact

Viktoria Serkina
Estonia Hiiu 42
11619 Tallinn
ESTONIA
Email: viktoria.serkina@tai.ee
Phone: +372 659 3993

References of Studies Using/Describing Database

1. Haldre K, Rahu M, Allvee K, Rahu K. Trends in teenage delivery and abortion rates in Estonia over more than two decades: a nationwide register-based study. Eur J Public Health. 2021 Oct 11;31(4):790-796.

2. Lubi K, Uibu M, Koppel K, Mets-Oja S. The rising impact of civic activism on health policy: The analysis of the closure of smaller obstetric units in Estonia. Health Policy. 2020 Nov 1;124(11):1239-44.

3. Veerus P. Induced abortions in Estonia, 1992-2017: registry-based study. European Journal of Public Health. 2019 Nov 1;29(Supplement_4):ckz186-114.

4. Allvee K, Rahu M, Haldre K, Karro H, Rahu K. Quality of IVF status registration in the Estonian Medical Birth Registry: a national record linkage study. Reproductive health. 2018 Dec;15(1):1-7.

5. Blondel B, Cuttini M, Hindori‐Mohangoo AD, Gissler M, Loghi M, Prunet C, Heino A, Smith L, van der Pal‐de Bruin K, Macfarlane A, Zeitlin J. How do late terminations of pregnancy affect comparisons of stillbirth rates in Europe? Analyses of aggregated routine data from the Euro‐Peristat Project. BJOG: An International Journal of Obstetrics & Gynaecology. 2018 Jan;125(2):226-34.

6. Postoev VA, Grjibovski AM, Odland JO. Population-based medical birth registries as tools for birth defects surveillance and investigation of their risk factors. Ekologiya cheloveka (Human Ecology). 2017 Dec 15(1):52-62.

7. Mõtus K, Emanuelson U. Risk factors for on-farm mortality in beef suckler cows under extensive keeping management. Res Vet Sci. 2017 Aug;113:5-12

8. Jakimaviciene EM, Tutkuviene J, Isakova J, Morkuniene R, Drazdiene N, Basys V. Changes in Total Number of Births and Birth Size during the 1995-2013: The Reflection of Socio-Economic Fluctuations in Lithuania?. Collegium antropologicum. 2017 Jul 2;41(2):97-107.

9. Oja L. Why is a “good abortion law” not enough? The case of Estonia. Health and human rights. 2017 Jun;19(1):161.

10. Kempers J, Ketting E, Chandra-Mouli V, Raudsepp T. The success factors of scaling-up Estonian sexual and reproductive health youth clinic network-from a grassroots initiative to a national programme 1991–2013. Reproductive Health. 2015 Dec;12(1):1-9.

Sep 21, 2021: Our 100th profile from the USA!

The Rheumatology Informatics System for Effectiveness (RISE) registry is a Qualified Clinical Data Registry (QCDR) developed by the American College of Rheumatology to help clinicians and researchers. RISE is the first and largest electronic health record (EHR)-enabled rheumatology registry collecting 2.6 Million records in the United States since 2014. It is a rheumatology-specific registry and includes patients with all medical conditions seen by a rheumatologist and all insurance types.

Rheumatology Informatics System for Effectiveness (RISE) Registry (USA)

Database Contact Data

Tracy Johansson, MS
Sr. Director, Registry
American College of Rheumatology
2200 Lake Boulevard NE
Atlanta, GA 30319
USA
Phone: +1 404-633-3777, ext. 105
Email: tjohansson@rheumatology.org

Alternate Contact

Tom Tack
Director, Registry Analytics
American College of Rheumatology
2200 Lake Boulevard NE
Atlanta, GA 30319
USA
Phone: +1 404-633-3777, ext. 137
Email: ttack@rheumatology.org

References of Studies Using/Describing Database

1. Hammam N, Li J, Kay J, Izadi Z, Yazdany J, Schmajuk G. Monitoring and Achievement of Target Serum Urate Among Gout Patients Receiving Long-Term Urate-Lowering Therapy in the American College of Rheumatology RISE Registry. Arthritis Care Res (Hoboken). 2023 Jul;75(7):1544-1552.

2. Hammam N, Evans M, Bell CF, Gairy K, Yazdany J, Schmajuk G. Evaluating the Use of Glucocorticoids Among Belimumab‐Treated Patients With Systemic Lupus Erythematosus in Real‐World Settings Using the Rheumatology Informatics System for Effectiveness Registry. ACR open rheumatology. 2022 Oct;4(10):883-9.

3. Stovall R, Kersey E, Li J, Baker R, Anastasiou C, Schmajuk G, Gensler L, Yazdany J. Incidence Rate and Factors Associated with Fractures Among Older Adults with Ankylosing Spondylitis in the United States [abstract]. Arthritis Rheumatol. 2022; 74 (suppl 9).

4. Bridges J, Li J, Mannion M, Schmajuk G, singh J. Contraception Documentation Patterns for Adult Females with Juvenile Idiopathic Arthritis on Teratogenic Medications in the Rheumatology Informatics System for Effectiveness (RISE) Registry [abstract]. Arthritis Rheumatol. 2022; 74 (suppl 9).

5.  Sattui S, Wan Z, Xie F, Clinton C, Domsic R, Curtis J. Treatment of Polymyalgia Rheumatica by Rheumatology Providers: Results from the ACR Rheumatology Informatics System for Effectiveness Registry [abstract]. Arthritis Rheumatol. 2022; 74 (suppl 9).

6.  Baker R, Li J, Stovall R, Curtis J, Xie F, Yazdany J, Schmajuk G. Reliability of Medication Information Derived from EHR Data Compared to Insurance Claims: An Analysis of Biologic Medications in RISE and Medicare [abstract]. Arthritis Rheumatol. 2022; 74 (suppl 9).

7. Humbert-Droz M, Izadi Z, Schmajuk G, Gianfrancesco M, Yazdany J, Tamang S. Natural Language Processing Tool for Extraction of Patient-Reported Outcomes from a National Multi-Electronic Health Records Registry [abstract]. Arthritis Rheumatol. 2021; 73 (suppl 9).

8.  Gianfrancesco M, Li J, Ja C, Seet A, Schmajuk G, Yazdany J. Effectiveness of TNFi versus Non-TNFi Biologics on Disease Activity in Obese Patients with Rheumatoid Arthritis: Data from the ACR’s RISE Registry [abstract]. Arthritis Rheumatol. 2021; 73 (suppl 9).

9.  Anastasiou C, Evans M, Schmajuk G, Yazdany J. Older Patients with Rheumatic Disease Are Commonly Prescribed Potentially Inappropriate Medications [abstract]. Arthritis Rheumatol. 2021; 73 (suppl 9).

10.  Yun H, LaMoreaux B, Chen L, Ledbetter S, Francis-Sedlak M, Saag K, Mikuls T, Curtis J. Effectiveness and Safety of Pegloticase with Concomitant Immunomodulatory Therapy [abstract]. Arthritis Rheumatol. 2021; 73 (suppl 9).

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