Sep 21, 2021: Our 100th profile from the USA!
The Rheumatology Informatics System for Effectiveness (RISE) registry is a Qualified Clinical Data Registry (QCDR) developed by the American College of Rheumatology to help clinicians and researchers. RISE is the first and largest electronic health record (EHR)-enabled rheumatology registry collecting 2.6 Million records in the United States since 2014. It is a rheumatology-specific registry and includes patients with all medical conditions seen by a rheumatologist and all insurance types.
Rheumatology Informatics System for Effectiveness (RISE) Registry (USA)
Database Contact Data
Tracy Johansson, MS
Sr. Director, Registry
American College of Rheumatology
2200 Lake Boulevard NE
Atlanta, GA 30319
USA
Phone: +1 404-633-3777, ext. 105
Email: tjohansson@rheumatology.org
Alternate Contact
Tom Tack
Director, Registry Analytics
American College of Rheumatology
2200 Lake Boulevard NE
Atlanta, GA 30319
USA
Phone: +1 404-633-3777, ext. 137
Email: ttack@rheumatology.org
References of Studies Using/Describing Database
1. Hammam N, Li J, Kay J, Izadi Z, Yazdany J, Schmajuk G. Monitoring and Achievement of Target Serum Urate Among Gout Patients Receiving Long-Term Urate-Lowering Therapy in the American College of Rheumatology RISE Registry. Arthritis Care Res (Hoboken). 2023 Jul;75(7):1544-1552.
2. Hammam N, Evans M, Bell CF, Gairy K, Yazdany J, Schmajuk G. Evaluating the Use of Glucocorticoids Among Belimumab‐Treated Patients With Systemic Lupus Erythematosus in Real‐World Settings Using the Rheumatology Informatics System for Effectiveness Registry. ACR open rheumatology. 2022 Oct;4(10):883-9.
3. Stovall R, Kersey E, Li J, Baker R, Anastasiou C, Schmajuk G, Gensler L, Yazdany J. Incidence Rate and Factors Associated with Fractures Among Older Adults with Ankylosing Spondylitis in the United States [abstract]. Arthritis Rheumatol. 2022; 74 (suppl 9).
4. Bridges J, Li J, Mannion M, Schmajuk G, singh J. Contraception Documentation Patterns for Adult Females with Juvenile Idiopathic Arthritis on Teratogenic Medications in the Rheumatology Informatics System for Effectiveness (RISE) Registry [abstract]. Arthritis Rheumatol. 2022; 74 (suppl 9).
5. Sattui S, Wan Z, Xie F, Clinton C, Domsic R, Curtis J. Treatment of Polymyalgia Rheumatica by Rheumatology Providers: Results from the ACR Rheumatology Informatics System for Effectiveness Registry [abstract]. Arthritis Rheumatol. 2022; 74 (suppl 9).
6. Baker R, Li J, Stovall R, Curtis J, Xie F, Yazdany J, Schmajuk G. Reliability of Medication Information Derived from EHR Data Compared to Insurance Claims: An Analysis of Biologic Medications in RISE and Medicare [abstract]. Arthritis Rheumatol. 2022; 74 (suppl 9).
7. Humbert-Droz M, Izadi Z, Schmajuk G, Gianfrancesco M, Yazdany J, Tamang S. Natural Language Processing Tool for Extraction of Patient-Reported Outcomes from a National Multi-Electronic Health Records Registry [abstract]. Arthritis Rheumatol. 2021; 73 (suppl 9).
8. Gianfrancesco M, Li J, Ja C, Seet A, Schmajuk G, Yazdany J. Effectiveness of TNFi versus Non-TNFi Biologics on Disease Activity in Obese Patients with Rheumatoid Arthritis: Data from the ACR’s RISE Registry [abstract]. Arthritis Rheumatol. 2021; 73 (suppl 9).
9. Anastasiou C, Evans M, Schmajuk G, Yazdany J. Older Patients with Rheumatic Disease Are Commonly Prescribed Potentially Inappropriate Medications [abstract]. Arthritis Rheumatol. 2021; 73 (suppl 9).
10. Yun H, LaMoreaux B, Chen L, Ledbetter S, Francis-Sedlak M, Saag K, Mikuls T, Curtis J. Effectiveness and Safety of Pegloticase with Concomitant Immunomodulatory Therapy [abstract]. Arthritis Rheumatol. 2021; 73 (suppl 9).