National Longitudinal Study of Adolescent to Adult Health (Add Health) (USA)

Database Contact Data

Sarah Dean, JD
Project Manager, Add Health
Carolina Population Center, UNC Chapel Hill
CB 8120
123 West Franklin Street, Bldg C
Chapel Hill, NC 27516
USA
Phone: +1 919-962-6090
Email: deansa@email.unc.edu

Alternate Contact

1. Sydney Will, MPH-PAPH
Data Dissemination Coordinator
Carolina Population Center
UNC-Chapel Hill, CB #2164-H
Carolina Square, Suite 210
123 West Franklin Street
Chapel Hill, NC 27516
USA
Phone: +1 (919) 445-6955 
Email: sydneylw@email.unc.edu

2. You may also complete the "contact us" form on this page: https://addhealth.cpc.unc.edu/about/contact-us/
Please refer to the list of resources on the page, so you can contact the appropriate department.

References of Studies Using/Describing Database

1. Alshehri K, Hawk G, Su L, Loprinzi P, Walker J. Body Weight Does Not Associate with Smoking Prevalence or Cigarette Consumption in Adult Women. Clinical Health Promotion. 2022 Dec 21:e22004-1.

2. Austin AE, Naumann RB, Shiue KY, Daniel L, Singichetti B, Hays CN. An Illustrative Review of Substance Use–Specific Insights From the National Longitudinal Study of Adolescent to Adult Health. Journal of Adolescent Health. 2022 Dec 1;71(6):S6-13.

3. Assini-Meytin LC, Thorne EJ, Sanikommu M, Green KM, Letourneau EJ. Impact of child sexual abuse on socioeconomic attainment in adulthood. Journal of Adolescent Health. 2022 Nov 1;71(5):594-600.

4. Assini-Meytin LC, Fix RL, Green KM, Nair R, Letourneau EJ. Adverse childhood experiences, mental health, and risk behaviors in adulthood: exploring sex, racial, and ethnic group differences in a nationally representative sample. Journal of Child & Adolescent Trauma. 2022 Sep;15(3):833-45.

5. Barry MC, Zimmer C, Halpern CT. Biomarkers of pre-pregnancy allostatic load and subsequent adverse birth outcomes. SSM-Population Health. 2022 Jun 1;18:101099.

6. Adzrago D, Kavi L, Ezeugoh RI, Osafo-Darko B. Temporal Patterns of Cigarette Smoking and Its Associated Covariates: a Multilevel Longitudinal Data Analysis. Global Social Welfare. 2022 Jun;9(2):121-9.

7. Abdel Magid HS, Milliren CE, Rice K, Molanphy N, Ruiz K, Gooding HC, Richmond TK, Odden MC, Nagata JM. Adolescent individual, school, and neighborhood influences on young adult hypertension risk. PloS one. 2022 Apr 28;17(4):e0266729.

8. Apostolou M. The direct reproductive cost of same-sex attraction: Evidence from two nationally representative US samples. Archives of Sexual Behavior. 2022 Apr 4:1-8.

9. Amialchuk A, Sapci O. The long‐term health effects of initiating smoking in adolescence: Evidence from a national longitudinal survey. Health Economics. 2022 Apr;31(4):597-613.

10. Bone JK, Bu F, Fluharty ME, Paul E, Sonke JK, Fancourt D. Arts and cultural engagement, reportedly antisocial or criminalized behaviors, and potential mediators in two longitudinal cohorts of adolescents. Journal of youth and adolescence. 2022 Mar 23:1-20.

Medical Data Vision (EBM Provider®) Health Insurance Association Database (Japan)

Database Contact Data

Medical Data Vision Co., Ltd.
Sumitomo Fudosan Kanda Bldg.
7 Kandamitoshirocho 
Chiyoda-ku
Tokyo 101-0053 
JAPAN
Phone: +81 3 5283 6911
Fax: +81 3 5283 6811
Email: ebm_sales@mdv.co.jp (English acceptable)

Alternate Contact

Please complete the contact form:https://en.mdv.co.jp/application/contactus/form.php

References of Studies Using/Describing Database

N/A

Jun 16, 2021: New database profile from the Netherlands

Managed by the Netherlands Comprehensive Cancer Organisation (IKNL), the Netherlands Cancer Registry is the only oncological hospital registry in the Netherlands with data on all cancer patients. Data are available on national level from 1989 onwards. The Netherlands has about 17,000,000 inhabitants. Annually, there are 116,500 new diagnoses of cancer and 44,000 cancer deaths in the Netherlands.

Netherlands Cancer Registry (Netherlands)

Database Contact Data

Jolanda Sinha
Press Officer
Postbus 19079, 3501 DB
Utrecht
THE NETHERLANDS
Email: j.sinha@iknl.nl
Phone: + 31 88 234 60 00
Mobile: +31 6 34 62 02 29

Alternate Contact

Dr. Otto Visser
Head of Cancer Registration
Postbus 19079, 3501 DB
Utrecht
THE NETHERLANDS
Email: o.visser@iknl.nl
Phone: + 31 88 234 60 00
Mobile: +31 6 18 41 86 67

References of Studies Using/Describing Database

1. Augustinus S, Schafrat PJM, Janssen BV, Bonsing BA, Brosens LAA, Busch OR, Crobach S, Doukas M, van Eijck CH, van der Geest LGM, Groot Koerkamp B, de Hingh IHJT, Raicu GM, van Santvoort HC, van Velthuysen ML, Verheij J, Besselink MG, Farina Sarasqueta A; Dutch Pancreatic Cancer Group. Nationwide Impact of Centralization, Neoadjuvant Therapy, Minimally Invasive Surgery, and Standardized Pathology Reporting on R0 Resection and Overall Survival in Pancreatoduodenectomy for Pancreatic Cancer. Ann Surg Oncol. 2023 Aug;30(8):5051-5060.

2. Mols F, Schoormans D, Netea-Maier R, Husson O, Beijer S, Van Deun K, Zandee W, Kars M, Wouters van Poppel PCM, Simsek S, van Battum P, Kisters JMH, de Boer JP, Massolt E, van Leeuwaarde R, Oranje W, Roerink S, Vermeulen M, van de Poll-Franse L. Determinants and mediating mechanisms of quality of life and disease-specific symptoms among thyroid cancer patients: the design of the WaTCh study. Thyroid Res. 2023 Jul 10;16(1):23.

3. Oymans EJ, de Kroon CD, Bart J, Nijman HW, van der Aa MA. Incidence of gynaecological cancer during the COVID-19 pandemic: A population-based study in the Netherlands. Cancer Epidemiol. 2023 Jun 20;85:102405. doi: 10.1016/j.canep.2023.102405. Epub ahead of print.

4. Siebinga TM, Janssen SHM, Boumans AW, van Eenbergen MC, Siflinger B, van der Graaf WTA, Husson O. Financial outcomes of Adolescent and Young Adult cancer survivors: a longitudinal population-based registry study. J Natl Cancer Inst. 2023 Jun 6:djad107. doi: 10.1093/jnci/djad107. Epub ahead of print.

5. Rijken A, Loef C, van de Wouw YAJ, van Erning FN, de Hingh IHJT. Updated Incidence, Treatment and Survival of a Nationwide Cohort of Patients with Peritoneal Metastases of Unknown Origin. Indian J Surg Oncol. 2023 Jun;14(Suppl 1):67-73.

6.  Rijken A, Galanos LJK, Burger JWA, Nienhuijs SW, van Erning FN, de Hingh IHJT. Peritoneal Metastases from Extraperitoneal Primary Tumors: Incidence, Treatment, and Survival from a Nationwide Database. Indian J Surg Oncol. 2023 Jun;14(Suppl 1):60-66.

7. Maas CCHM, van Klaveren D, Visser O, Merkx MAW, Lingsma HF, Lemmens VEPP, Dinmohamed AG. Number of life-years lost at the time of diagnosis and several years post-diagnosis in patients with solid malignancies: a population-based study in the Netherlands, 1989-2019. EClinicalMedicine. 2023 May 11;60:101994.

8. Padilla CS, Ho VKY, Mooijenkind TWAN, Louwman MWJ, de Vos FYFL, Bekkenk MW, Minnaard WA, Loef C, van Zanten SEMV. Brain metastases in adult patients with melanoma of unknown primary in the Netherlands (2011-2020). J Neurooncol. 2023 May;163(1):239-248.

9. Nuijens ST, van Hoogstraten LMC, Meijer RP, Kiemeney LA, Aben KKH, Witjes JA. Minimum Volume Standards: An Incentive To Perform More Radical Cystectomies? Eur Urol Open Sci. 2023 Mar 31;51:47-54.

10. Yildirim H, Schuurman MS, Widdershoven CV, Lagerveld BW, van den Brink L, Ruiter AEC, Beerlage HP, van Moorselaar RJA, Graafland NM, Bex A, Aben KKH, Zondervan PJ. Variation in the management of cT1 renal cancer by surgical hospital volume: A nationwide study. BJUI Compass. 2023 Mar 4;4(4):455-463.

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